Type

Journal Article

Authors

Frans Verhey
Orazio Zanetti
Elisa Portolani
Manuel Gonçalves-Pereira
Maria Marques
Kate Irving
Louise Hopper
Anders Wimo
Ron Handels
Geir Selbaek
and 9 others

Subjects

Psychology

Topics
quality of life quality of care family carers people european family life psychological distress dementia

Needs and quality of life of people with middle-stage dementia and their family carers from the European Actifcare study. When informal care alone may not suffice. (2017)

Abstract The Actifcare (Access to timely formal care) study investigated needs of people with dementia and their families during the phase in which formal care is being considered, and examined whether higher need levels are related to lower quality of life (QOL). From eight European countries 451 people with dementia and their carers participated. Needs were measured with the Camberwell Assessment of Need for the Elderly. QOL was measured with the QOL-AD, and carer quality of life was measured with the CarerQol. The relationship between needs and QOL was analysed with multiple regression analyses. Needs were expressed in the domains of psychological distress, daytime activities, company and information. People with dementia rated their unmet needs significantly lower than their carers: the mean number of self-rated unmet needs was 0.95, whereas the mean proxy ratings were 1.66. For met needs, the self-rated mean was 5.5 and was 8 when proxy-rated. The level of needs reported was negatively associated with QOL for both. The study results show that informal carers reported almost twice as many needs as people with dementia. The domains in which needs are expressed should be the primary focus for interventions to support   QOL. The perspectives of people with dementia are informative when identifying needs.
Collections Ireland -> Dublin City University -> PubMed

Full list of authors on original publication

Frans Verhey, Orazio Zanetti, Elisa Portolani, Manuel Gonçalves-Pereira, Maria Marques, Kate Irving, Louise Hopper, Anders Wimo, Ron Handels, Geir Selbaek and 9 others

Experts in our system

1
Frans Verhey
Dublin City University
Total Publications: 25
 
2
Orazio Zanetti
Dublin City University
Total Publications: 15
 
3
Elisa Portolani
Dublin City University
Total Publications: 13
 
4
Manuel Gonçalves-Pereira
Dublin City University
Total Publications: 14
 
5
Maria J Marques
Dublin City University
Total Publications: 14
 
6
Kate Irving
Dublin City University
Total Publications: 66
 
7
Louise Hopper
Dublin City University
Total Publications: 34
 
8
Anders Wimo
Dublin City University
Total Publications: 9
 
9
Ron Handels
Dublin City University
Total Publications: 7
 
10
Geir Selbaek
Dublin City University
Total Publications: 11