Type

Journal Article

Authors

K Irving
O Zanetti
E Portolani
G Selbaek
M Michelet
A Wimo
G Meyer
A Bieber
A Stephan
M de Vugt
and 9 others

Subjects

Psychology

Topics
quality of life follow up prospective cohort study people european social support self study intervention development

A comparison of self and proxy quality of life ratings for people with dementia and their carers: a European prospective cohort study. (2018)

Abstract To identify correlates of self-rated and proxy-rated quality of life (QoL) in people with dementia on (i) a dementia-specific and (ii) a capability-wellbeing QoL measure at baseline and 12-month follow-up, and to consider such factors in the context of QoL intervention development. Prospective clinical and demographic data were collected from 451 community-dwelling dyads (mild-moderate dementia) across eight European countries. QoL was measured using the QOL-AD and the ICECAP-O. Multivariate modelling identified correlates of self- and proxy-rated QoL at baseline and at 12-month follow-up. Carer's proxy-ratings of QoL were significantly lower than self-ratings at all time-points for both measures. Proxy-ratings declined over time, but self-ratings remained stable. Baseline predictors of greater self-rated QoL were education, and greater functional ability and relationship quality. Greater proxy-rated QoL was associated with education and greater functional ability, relationship quality, carer social support and carer QoL, lower carer anxiety/depression and less severe neuropsychiatric symptoms in people with dementia. At follow-up, greater self-rated QoL was predicted by greater functional ability, relationship quality, carer social support and having a spousal carer. Greater proxy-rated QoL at follow-up was associated with the same factors as at baseline; however, the dyad living together was an additional predictive factor. Both proxy-ratings and self-ratings of QoL should be interpreted with caution and in the context of each individual caregiving relationship. Different functional, psychosocial, relational and contextual factors influence self- and proxy-ratings, and both sets of factors should be considered in the context of QoL intervention development for the dyad.
Collections Ireland -> Dublin City University -> PubMed

Full list of authors on original publication

K Irving, O Zanetti, E Portolani, G Selbaek, M Michelet, A Wimo, G Meyer, A Bieber, A Stephan, M de Vugt and 9 others

Experts in our system

1
Kate Irving
Dublin City University
Total Publications: 66
 
2
Orazio Zanetti
Dublin City University
Total Publications: 15
 
3
Elisa Portolani
Dublin City University
Total Publications: 13
 
4
Geir Selbaek
Dublin City University
Total Publications: 11
 
5
Anders Wimo
Dublin City University
Total Publications: 9
 
6
Gabriele Meyer
Dublin City University
Total Publications: 12
 
7
Anja Bieber
Dublin City University
Total Publications: 17
 
8
Astrid Stephan
Dublin City University
Total Publications: 16
 
9
Marjolein de Vugt
Dublin City University
Total Publications: 15