Type

Journal Article

Authors

Anders Wimo
Frans Verhey
Orazio Zanetti
Bob Woods
Claire Wolfs
Marjolein de Vugt
Astrid Stephan
Geir Selbaek
Janne Røsvik
Elisa Portolani
and 12 others

Subjects

Medicine & Nursing

Topics
quality of life cohort study health european resource use quality of care eq 5d dementia

Quality of Life, Care Resource Use, and Costs of Dementia in 8 European Countries in a Cross-Sectional Cohort of the Actifcare Study. (2018)

Abstract With 10.5 million people with dementia in Europe and $301 billion associated costs, governments face challenges organizing access to care. To examine the costs related to formal and informal care use and quality of life for people with dementia in eight European countries, and explore the association with unmet needs. Cross-sectional data from 451 persons with dementia and their informal caregivers of the Actifcare cohort study were obtained. Formal and informal care use was multiplied by country specific unit prices of services. Needs were measured using the CANE and health-related quality of life (HRQOL) of the person with dementia (both self- and proxy-rated) and informal caregiver's quality of life using EQ-5D-5L, ICECAP-O, DEMQOL-U, and CarerQol utility scores. The association between costs and country, European region, and unmet needs was assessed using multi-level linear regression. Self-rated EQ-5D-5L utility score was higher than proxy-rated (0.84 and 0.71, respectively). Informal caregivers' utility score was 0.84. Across eight countries annual mean costs of formal and informal care were approximately € 17,000. Unmet needs were not associated with annual costs of care, nor with proxy-rated HRQOL, but were associated with self-rated HRQOL. We found varying relationships between unmet needs and quality of life, and no association between unmet needs and care costs, although the results were sensitive to various factors. Future research should further investigate the relation between unmet needs, quality of life and costs to generate a better understanding of the effects of (un)timely access to care.
Collections Ireland -> Dublin City University -> PubMed

Full list of authors on original publication

Anders Wimo, Frans Verhey, Orazio Zanetti, Bob Woods, Claire Wolfs, Marjolein de Vugt, Astrid Stephan, Geir Selbaek, Janne Røsvik, Elisa Portolani and 12 others

Experts in our system

1
Anders Wimo
Dublin City University
Total Publications: 9
 
2
Frans Verhey
Dublin City University
Total Publications: 25
 
3
Orazio Zanetti
Dublin City University
Total Publications: 15
 
4
Bob Woods
Dublin City University
Total Publications: 15
 
5
Claire Wolfs
Dublin City University
Total Publications: 13
 
6
Marjolein de Vugt
Dublin City University
Total Publications: 15
 
7
Astrid Stephan
Dublin City University
Total Publications: 16
 
8
Geir Selbaek
Dublin City University
Total Publications: 11
 
9
Elisa Portolani
Dublin City University
Total Publications: 13