Type

Journal Article

Authors

Kate Irving
Eamon O' Shea
Suzanne Timmons
Emma O' Shea

Subjects

Business

Topics
caregiving primary care service delivery informal service providers thematic analysis adult day care policy makers service planning public responsibility access to and utilization of services research design people

Multiple Stakeholders' Perspectives on Respite Service Access for People With Dementia and Their Carers. (2019)

Abstract People with dementia and carers do not always access respite services in a timely manner, or in some cases, at all. Although carers' perspectives on respite access have been explored, other stakeholder perspectives, especially providers and people with dementia, are underrepresented in the existing literature. The aim of this study was to synthesize multiple stakeholders' perspectives, including people with dementia, on accessing respite services in the context of dementia. Purposive maximum variation sampling was used. Semi-structured interviews were conducted with 35 key stakeholders, including people with dementia (n = 6), carers (n = 9), respite frontline staff (n = 4), respite managers (n = 8), primary care professionals (n = 3), and policy-makers/academics (n = 5). The process of consent is outlined. Data were interpreted inductively using thematic analysis. Reflexivity was considered throughout the research process. Three themes ("Service Acceptability," "Navigational Knowledge and Skills," "Constructing and Adjudicating Respite Need") were identified that relate to how access to respite services is negotiated between service providers and dyads. A number of the findings support previous research; however, novel findings discussed relating to the access negotiation process include (a) the ambiguous legitimacy of respite needs, in a system configured to deliver a biomedical model of care and which considers nonmedical care as a family responsibility, and (b) the constraining effects of disparate conceptualizations of "respite" between carers and providers. Future research should interrogate the appropriate boundaries of public responsibility in relation to respite service planning/delivery for dementia, with particular reference to client preferences for community and in-home provision.
Collections Ireland -> Dublin City University -> PubMed
Ireland -> University College Cork -> Centre for Gerontology and Rehabilitation
Ireland -> University College Cork -> Research Institutes and Centres
Ireland -> University College Cork -> Centre for Gerontology and Rehabilitation - Journal Articles

Full list of authors on original publication

Kate Irving, Eamon O' Shea, Suzanne Timmons, Emma O' Shea

Experts in our system

1
Kate Irving
Dublin City University
Total Publications: 66
 
2
Eamon O' Shea
Dublin City University
Total Publications: 6
 
3
Suzanne Timmons
University College Cork
 
4
Emma O' Shea
Dublin City University
Total Publications: 5